Mad Knowledges and User-Led Research
portes grátis
Mad Knowledges and User-Led Research
Rose, Diana Susan
Springer International Publishing AG
09/2022
322
Dura
Inglês
9783031075506
15 a 20 dias
585
Descrição não disponível.
Part I Setting the Scene.- 1 What Does Madness Articulate?.- Background.- When Madness Begins to Speak What Does 'It' Say?.- Mobilising as Speaking Back?.- Non-uniformity.- Who Speaks?.- The Underground.- The Field.- The 'Mainstreams' of Survivor Voices-Psychiatry.- The Academy and 'Psy' Research.- Speaking Back to Austerity.- Conclusion.- References.- 2 Mental Challenges as Constitutive of Marginalisation?.- Background.- Collectives.- The Clinical Encounter.- Out of the Hospital.- Can Communities be Developed?.- Psychiatric Facilities and Policies as Obstacles to Forming Groups.- Survivors as a 'Marginalised Community'.- Counter-Narratives from the Mainstream.- Activism.- What Is to be Done?.- Conclusion.- References.- Part II User Involvement in Research-England as a Case Study.- 3 History of Patient and Public Involvement in England.- Background and Summary.- Language and Representation.- Who Is the Public?.- Can I Apply?.- What Is 'Meaningful' Involvement?.- Power.- Changes in Structures.- Research by 'Lay' People Outside Official Structures.- Hidden from PPI-Lay Research.- Conclusion.- References.- 4 Research and Practice or What About the Wild?.- The Problems.- Scope.- Impact: The Beginning.- The Question of 'Impact' in Involvement Activities.- What Is Meant by the Term 'Impact'? Two Approaches.- Evidence-Based Medicine (EbM).- Science and Technology Studies.- Survivor Research and Change.- The Fundamental Difference.- Where Does Madness Sit in the PPI Terrain?.- Back to 'Impact'.- What Happens When PPI Happens?.- The Secret of Process.- Process Evaluations.- Going Beyond PPI.- Conclusion.- References.- 5 Working with Others and 'Coproduction'.- Background.- Does Everybody Agree?.- Addressing the Field.- Relevant Themes.- Settings, Partners and Mental Health.- Historical Aspects of Coproduction.- Examples of Coproduction?.- The Costs of Coproduction?.- Partners and Allies.- Power Again.- Conclusion.- References.- Part III Foundational Categories and User-Led Research.- 6 Experience as a Foundation of Knowledge-Making: What's in a Name?.- Background.- Process.- Naming.- Terminology, Identity and 'Who Counts'.- Lived Experience.- Disability Under Erasure.- From Soft to Strong and Back Again.- Survivordom.- A Third Way?.- Implications of Names.- Experts and How Should We Talk to Them?.- The Move to Lived Experience.- Activism and Knowledge-Making.- Conclusion.- References.- 7 Experience: What's in a Foundational Category?.- Background.- Examples from the Literature.- Whose Experiences Does Research Need?.- Mental Health Specifically.- Diversity.- Lived Experience: What Is It?.- Liminal Identities in Liminal Spaces.- Individual and Collective Experience.- Conclusion: Experience in Context.- References.- 8 Specific Projects Led by Service Users.- Background.- Being a User/Survivor Researcher.- Example 1: Consumer/Patient-Centred Systematic Reviews.- Analysis from the Present.- Example 2: Participatory Research.- User-Generated Outcome Measures.- Outcome Measures.- VOICE.- Delving into the Conversations.- Participatory Research and Power.- Ethics.- Community Validation.- Modifying the Model.- Is There a 'Community' of Mental Health Service Users/Survivors?.- Conclusion.- References.- Part IV Guiding Principles.- 9 Intersectionality and Mental Life Disturbed.- Background.- Approach.- Women and Madness.- Practice.- Mad Politics.- Feminist Therapy and Structural Violence.- Racialisation and Madness in the West.- The Sharp End of Psychiatry.- A White Survivor Movement.- Problems.- Conclusion.- References.- 10 Conclusion.- Theory.- Conditions for Silencing Madness.- Mental Health and Meaning in the West.- War.- Trauma.- Not All Meaning Is Therapeutic.- If Madness Is Meaningful What Are Its Conditions?.- The Routledge International Handbook of Mad Studies.- The Social Model of Disability.- Psychosocial Disability.- Reasonable Accommodations.- What Is Madness?.- Activism and Last Words.- Joining up Conditions.- Implications for Research.- Activism as Knowledge-A Provocation.- Conclusion.- References.- Index.
Este título pertence ao(s) assunto(s) indicados(s). Para ver outros títulos clique no assunto desejado.
Mad Studies;Madness;User-led Research;Disability studies;psychosocial disabilities;counter-knowledge;survivor-led research;Patient and Public Involvement (PPI);critical psychiatry;Outcome Measures;participatory research;Global Mental Health;epistemic injustice;Mad epistemologies;experiential knowledge;Co-production;Knowledge-Making;Women and madness;feminist therapy;mental health activism
Part I Setting the Scene.- 1 What Does Madness Articulate?.- Background.- When Madness Begins to Speak What Does 'It' Say?.- Mobilising as Speaking Back?.- Non-uniformity.- Who Speaks?.- The Underground.- The Field.- The 'Mainstreams' of Survivor Voices-Psychiatry.- The Academy and 'Psy' Research.- Speaking Back to Austerity.- Conclusion.- References.- 2 Mental Challenges as Constitutive of Marginalisation?.- Background.- Collectives.- The Clinical Encounter.- Out of the Hospital.- Can Communities be Developed?.- Psychiatric Facilities and Policies as Obstacles to Forming Groups.- Survivors as a 'Marginalised Community'.- Counter-Narratives from the Mainstream.- Activism.- What Is to be Done?.- Conclusion.- References.- Part II User Involvement in Research-England as a Case Study.- 3 History of Patient and Public Involvement in England.- Background and Summary.- Language and Representation.- Who Is the Public?.- Can I Apply?.- What Is 'Meaningful' Involvement?.- Power.- Changes in Structures.- Research by 'Lay' People Outside Official Structures.- Hidden from PPI-Lay Research.- Conclusion.- References.- 4 Research and Practice or What About the Wild?.- The Problems.- Scope.- Impact: The Beginning.- The Question of 'Impact' in Involvement Activities.- What Is Meant by the Term 'Impact'? Two Approaches.- Evidence-Based Medicine (EbM).- Science and Technology Studies.- Survivor Research and Change.- The Fundamental Difference.- Where Does Madness Sit in the PPI Terrain?.- Back to 'Impact'.- What Happens When PPI Happens?.- The Secret of Process.- Process Evaluations.- Going Beyond PPI.- Conclusion.- References.- 5 Working with Others and 'Coproduction'.- Background.- Does Everybody Agree?.- Addressing the Field.- Relevant Themes.- Settings, Partners and Mental Health.- Historical Aspects of Coproduction.- Examples of Coproduction?.- The Costs of Coproduction?.- Partners and Allies.- Power Again.- Conclusion.- References.- Part III Foundational Categories and User-Led Research.- 6 Experience as a Foundation of Knowledge-Making: What's in a Name?.- Background.- Process.- Naming.- Terminology, Identity and 'Who Counts'.- Lived Experience.- Disability Under Erasure.- From Soft to Strong and Back Again.- Survivordom.- A Third Way?.- Implications of Names.- Experts and How Should We Talk to Them?.- The Move to Lived Experience.- Activism and Knowledge-Making.- Conclusion.- References.- 7 Experience: What's in a Foundational Category?.- Background.- Examples from the Literature.- Whose Experiences Does Research Need?.- Mental Health Specifically.- Diversity.- Lived Experience: What Is It?.- Liminal Identities in Liminal Spaces.- Individual and Collective Experience.- Conclusion: Experience in Context.- References.- 8 Specific Projects Led by Service Users.- Background.- Being a User/Survivor Researcher.- Example 1: Consumer/Patient-Centred Systematic Reviews.- Analysis from the Present.- Example 2: Participatory Research.- User-Generated Outcome Measures.- Outcome Measures.- VOICE.- Delving into the Conversations.- Participatory Research and Power.- Ethics.- Community Validation.- Modifying the Model.- Is There a 'Community' of Mental Health Service Users/Survivors?.- Conclusion.- References.- Part IV Guiding Principles.- 9 Intersectionality and Mental Life Disturbed.- Background.- Approach.- Women and Madness.- Practice.- Mad Politics.- Feminist Therapy and Structural Violence.- Racialisation and Madness in the West.- The Sharp End of Psychiatry.- A White Survivor Movement.- Problems.- Conclusion.- References.- 10 Conclusion.- Theory.- Conditions for Silencing Madness.- Mental Health and Meaning in the West.- War.- Trauma.- Not All Meaning Is Therapeutic.- If Madness Is Meaningful What Are Its Conditions?.- The Routledge International Handbook of Mad Studies.- The Social Model of Disability.- Psychosocial Disability.- Reasonable Accommodations.- What Is Madness?.- Activism and Last Words.- Joining up Conditions.- Implications for Research.- Activism as Knowledge-A Provocation.- Conclusion.- References.- Index.
Este título pertence ao(s) assunto(s) indicados(s). Para ver outros títulos clique no assunto desejado.
Mad Studies;Madness;User-led Research;Disability studies;psychosocial disabilities;counter-knowledge;survivor-led research;Patient and Public Involvement (PPI);critical psychiatry;Outcome Measures;participatory research;Global Mental Health;epistemic injustice;Mad epistemologies;experiential knowledge;Co-production;Knowledge-Making;Women and madness;feminist therapy;mental health activism
